Rare diseases and expertise centers in the Netherlands

Last week, during a lecture on rare diseases, the report “Aanwijzen van expertisecentra voor zeldzame aandoeningen in Nederland” (Recognition of centres of expertise for rare diseases in the Netherlands) was discussed. One of the attendees used AI to create a blog reflecting on its key takeaways.

While a 𝗻𝗲𝘄 𝗘𝗖𝗭𝗔 𝗽𝗼𝗹𝗶𝗰𝘆 vision for 2025 has been introduced, many of the fundamental issues remain unresolved and some new issues arose. For those interested in the appointment of expertise centers for rare diseases in the Netherlands, an English interpretation of the report is now available.

Let’s keep the conversation going! 💬